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Need Help @suggestions

bashful 4751 started this conversation

Hi everyone first of all I do not mean to sound harsh about my daughter but I am finding that when she comes in most days from school goodness she is 16 and handicapped born with  downe's syndrome at birth I do wont some help with her and if anybody has had nursing or respite care I would like to know now I hav said a few bad words already she loves to eat and

sometimes I do wonder did she eat at school it is just her and I some afternoons are alright but some it is like I am suppose to be at a job I think I am in the emergency room she is just

wound up seems like I know most of my  problem and why I do not know I cannot go back to

sleep we get up at 6:50 to get her ready for school she can be slow so it amy take her 10 minutes to get into the bathroom  right now the bus is still off  I have her ready by 8:05  or 8;10 coming back home the same way I just wont to sat down sometimes I am not no baby and here I am feeling all silly breathing all hard I hate to get all drained from being tried I do not wont to get up the next morning how can I get myself to sleep of days when she is at school  so I will not feel all worn out the next morning I have said okay Wanda for the longest time from last year school started I am going to change my ways .

That ain't happening so far but it needs to school is in it's3rd week please someone email meASAP I about lost my mind and I do love  her but it ain't easy

 

 

sc

 

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storm747

Wow sweetie, you are having a hard time and I feel for you, first do you have any family members that can take your daughter for a couple of hours a day or maybe a day one the weekend to give you a chance to regroup? I found some resources that I think will be helpful.

http://www.down-syndrome.org/ here ou will find helpful information and peopele you can chat with.

http://www.nads.org/  This is the national Org and has a lot of helpful articles and resources

 http://downsyndrome.com/ This is a community that will be very helpful in dealing and understanding and you can chat with other mothers and get some first hand ideas and problem solving solutions.

http://groups.yahoo.com/group/ds-autism/ this is a group that maybe helpful they are mothers also with kids with DS and may shine some light for you.

 

I hope these were helpful let me know and I will find more if you need it.

reply to storm747